As with many of the other things we've been through, today was a much bigger deal for us than it was for Emmett. To him this was just another day in the clinic.
Our hearts are full of gratitude for many people who have supported us over the past year. The notes, cranes, cards, and gifts have all been very touching. Most of all we are thankful for the prayers, for the fasting, and for faith of so many people that has lifted, strengthened, and sustained us through the trials of Emmett's treatment.
The fact that Emmett is alive today almost a year and a half after being diagnosed with AT/RT is nothing short of a miracle. And we are so thankful for each and every one of you who have been a part of that miracle.
This journey is far from over. Emmett will likely end up with a fever next week and we'll be back in the hospital for a few days. Then there will be another MRI and a few other tests before we can leave Boston. Hopefully we'll be free to leave sometime in August, though we probably won't head back until sometime in September. You can imagine we have a lot of concerns about leaving the watchful care of the doctors that saved Emmett's life. But we are excited about the idea of going HOME.
We will continue living each day to the fullest, enjoying every moment and praying that God blesses us with more good days in the future. There is still a long road ahead...and our lives will never ever be the same. But we have so much to celebrate, especially today at the conclusion of Emmett's chemotherapy. May we never see the stuff again!
|Emmett started the day with a blow out. But better on this chair than in the car!|
|With Mary Ann, Emmett's NP. She has been absolutely wonderful to work with.|
|And or course we got a picture with Dr. Chi. And yes, Emmett was playing hard to get today, even though he ran up and smacked her in the bum last week.|
|Emmett and Katy making faces.|
|We had to stop by the Dana Farber garden so Emmett could enjoy his thinking spot.|
|Emmett was ready to check out of the clinic like always.|
|Emmett's friends from the resource room.|
|To celebrate we took Emmett to Monster's University tonight. This was the first movie he's sat through in the theater.|
|I think he enjoyed it!|