Friday, July 14, 2017


Emmett did great on his lumbar puncture today!  It was done at UNMH by Dr. Kuttish (sp?).  Clayton and Katy did great too.

Afterwards Emmett enjoyed playing with his new (and only) fidget spinner while enjoying pizza.  He's wanted a fidget spinner for a long time and finally finished earning the $$ for it last night.  We picked it up on the way to the hospital this morning.

We'll get the LP results in a couple of days.

Tonight Emmett said the opening prayer at a fundraising dinner for the Children's Cancer Fund of New Mexico.  There were 600 people there!  He did a great job and didn't get nervous.  What a trooper!  "Two Ties" Clayton knows how to ear a roll (and sometimes reminds me of Harpo Marx). Who are these kids' parents anyway?

Wednesday, July 12, 2017

6/30/17 MRI

We recently traveled to Boston for Emmett's latest follow-up MRI.  He did it again without sedation!  He's on a roll. 

One spot in the scan showed some small changes from last time.  This is the area of his "tethered spinal cord" that the doctors have commented on in the past.  The area is on the front side of his spinal cord at the C5-C6 level.  They also noted a compression fracture in one of his vertebra. 

The doctors ordered a follow-up PET/CT scan to look for sugar uptake in the tissues in this area, and the scan identified a low level of activity at the spot in question.

It's uncertain where we go from here.  In the past the doctors have found logical explanations for the findings in this area.  We hope and pray the same is true this time.  In the coming days Emmett will have a lumbar puncture back home in New Mexico to check for malignant cells in his spinal fluid.

We welcome your prayers and faith as we wait for more good news for Emmett!