A respite in Albuquerque

Emmett finished craniospinal radiation on 6/28!  He did amazing through it all.  He continues to be our cancer fighting champion that can't be kept down! We pray that is ever the case.

We've developed some very close relationships with Emmett's medical staff at the radiation center and it was hard to say goodbye.  We have come to love Emmett's doctor, his physician's assistant, and his nurse so very much.  There aren't many people who truly understand what it is that Emmett has gone through and the insurmountable odds he has faced.  Or who see the bravery and grace with which he fights his battles.  But after treating Emmett with proton radiation four times in 7 years, the medical staff at MGH have had a chance to really come to know Emmett on a personal level...and in the process, have developed a deep love and appreciation for him....a love that's so clear to see.  And when you see someone who loves your child like their own, who is doing their very, very best preserve your child's health, who so desperately wants your child to fare well, and who falls in love with Clayton and Charlotte in the process, it creates a bond that you can't describe.

Oh how we love the MGH proton therapy staff!

After radiation completed the doctors decided to give Emmett a month off to recover, so we came home to Albuquerque!  How wonderful it's been to be back in our own home this past week!  I can't describe how amazing it feels to live life like a normal family, even if just for a couple of weeks.

We're not sure what the future looks like at this point.  We'll do a follow-up scan in New Mexico in late July, then we'll return to Boston for a follow-up with our primary team in September.  Where we go from there is uncertain.  It's possible that future therapy could be completed remotely from Albuquerque.  Or we might need to spend more time in Boston.  At this point the team is unclear about what we should do next. 

But while they figure it out, we're living the dream in the 505.