Tuesday, December 24, 2019

A special Christmas surprise for Emmett

On Sunday afternoon we had plans to go to a friend's house dinner.  This friend recently had several loads of dirt dumped in her backyard for landscaping, and the boys were excited to come drive their remote control trucks in the fresh dirt.  When the landscaping company learned that a boy fighting cancer was coming to play in the dirt they dumped, they offered to bring over some of their trucks for the boys to explore and play on.

Well, I guess one thing led to another, and word that Emmett was coming over and loved trucks spread quickly across social media over the course of about 3 hours, and by the time we made it over to our friend's house we were welcomed by this:


It was absolutely amazing.  There were firetrucks, excavators, bobcats, loaders, wreckers, crane trucks, tree trimmers, dump trucks, snow removal teams, landscapers, semi trucks, and many, many other types of vehicles.  They had all the trucks ready for inspection by Emmett and he was able to walk around the lot and climb in and drive any vehicle he wanted.  He got a ride in a bucket truck, he got to drive a dump truck, and he got to move snow with a front end loader.  And Clayton got rides too!  They had toys, shirts, hats, and other swag waiting at various trucks for the kids to collect as they made their way around the lot.  And they also had collected a very generous cash donation to help make this a very special and memorable Christmas for Emmett and his siblings.


We were touched and humbled beyond expression.  That so many people would go so far out of their way on a Sunday afternoon on short notice to bring all their trucks together and collect toys and gifts for the Emmett, Clayton and Charlotte -- kids they hadn't even met -- was so very touching.  It was a very special and Christmas experience for all of us.

The trucks gave Emmett a goodbye salute on their way out!


Channel 5 News was there also and shared Emmett's experience in the second half of the below clip.


How thankful we are to know that so many people are thinking of our family and praying for Emmett this Christmas season.  Emmett is halfway through another round of radiation treatment, and miraculously, he is still fully functional and is generally still feeling well.  We are so grateful for the opportunity to celebrate another Christmas together as a family here on earth!  And we will keep petitioning the Heavens for continued blessings to be upon our family!

Many times those blessings come through others as we experienced this week.  How thankful we are for angels all around doing God's work to strengthen and bless their fellowmen!  How inspiring to see so many people with the true spirit of Christmas!

God bless you all!  And Merry Christmas!

Sunday, December 1, 2019

Thank you!

Just a quick note to express our sincere appreciation to everyone who joined us in fasting and prayer today petitioning the heavens for the very best they have to offer our precious son. 

We wanted to let you know that Emmett felt the strength of those prayers!  This past week he has generally been low energy with the new treatments he started.  But today when we got back from church he was full of life and energy and he spent the afternoon and evening bouncing around from project to project until we finally insisted he go to bed.  He built a large Lego set for his brother Clayton, he decided what he wanted for dinner and collected all the ingredients and made the dinner himself, he ran outside to drive his Grave Digger monster truck in the snow and then spent at least a half hour shoveling snow, and the list goes on.  There wasn't a dull moment in the day, he was always up and doing something.  And we believe his energy and enthusiasm was largely due to the folks praying for him today. 

And so thank you, so very much, for helping Emmett have a great day!  And we're looking forward to more good days ahead!  We appreciate so much the love and goodness of all the people around us!  May God bless you all!

Friday, November 22, 2019

November update

After completing radiation on November 1st, Emmett needed a three week washout period with no treatment before he could start the 8H9 trial in NYC.  He enjoyed having some time off treatment the last few weeks and it was great to see his energy and personality perk back up.  His scan this week had discouraging news, however.  Consequently, he was disqualified from the 8H9 trial (which was supposed to start Monday).  And that leaves us scrambling for something new to use moving forward.

The good news is that Emmett is generally still fully functional and so far side effects have been minimal...it's nothing short of miraculous that his mind and his body have been so well preserved for so long.  But we're taking life one day at a time at this point.

If heaven has any more blessings or tender mercies to shower upon us, it's best if they come quickly!  Please pray that they do!

Thursday, October 24, 2019

In Radiation Again...

Just a quick update to let folks know that we're halfway through radiation treatment for the remaining lesion that hadn't disappeared on the last scan along with the area they removed the tumor from during Emmett's brain surgery.  They decided to do 10 days of fractionated proton radiation to treat the tumor cavity, and then the small lesion will be treated with photon radiation (stereotactic) later next week.  So far Emmett has been tolerating the treatments well.

Next week we'll consult with a group that can get Emmett on a clinical trial for a drug called omburtamab which is commonly referred to as 8H9.  This therapy is considered "radio-immunotherapy".  It sounds like they create antibodies that are attached to a radioisotope which is then injected to the brain.  When the antibodies attach to cancer cells, a radiation dose is delivered to kill the cells.  The therapy is for neuoblastoma, but there is some evidence that it might also be helpful for AT/RT.  Ideally kids are supposed to come into the trial with no evidence of disease, so we're hoping that Emmett's radiation and continued IT therapy has him in a "no visible disease" state before starting the trial.

Emmett has been low energy lately...these endless treatments taking a toll on the poor guy.  He did have enough energy to dress up with Clayton in their Halloween costumes before going to his treatment on Tuesday!  They put a smile on everyone's face.

Please keep praying that the treatments work!  With Emmett's promising response to IT therapy, with a follow-on punch from radiation, and then with the promising 8H9 study, we have reason for hope!


Thursday, October 10, 2019

Some good news!

The two small lesions that remained after Emmett's brain surgery have reduced in size in the time since Emmett's surgery!  One of them is significantly smaller, and the other one disappeared completely!  The radiation team was planning to treat both of these masses with radiation next week, but now will only treat the one they can still see.  They also plan on treating the cavity from which Dr. Smith removed the main tumor mass.

To learn that Emmett's body is responding to the intrathecal therapy he's receiving is so amazing!  We didn't know when we'd see him respond to a medicine again!  We know that the prayers and fasting of so many have contributed to this miracle for our family, and we thank you for your faith!

I can't express how much this ray of hope lifts our spirits.  What a sweet tender mercy for our family!

To celebrate, we went out for dessert last night.  For his "dessert" Emmett ordered bottomless zucchini fries with ranch dressing.  He ate three servings and took three more servings to go.  (The steroids he's on have done wonders for his appetite!) The smile on his face as he walked out of the restaurant with a bulging to-go box under arm could stretch across Texas. 

...I'm pretty sure we all had that same smile on our faces, with this latest news.  Go Emmett!!


Sunday, September 29, 2019

Home!

Just a quick update to say that Emmett is recovering well and they discharged us from the hospital yesterday.  So that means the doctors are happy with the progress he’s making.  It’s great to be all together as a family again.

Thanks for all your prayers, cards, packages, and other well wishes.  We have truly been lifted by so many!  God bless you all!

Thursday, September 26, 2019

Surgery's over!

Emmett is out of surgery and is moving all his limbs and talking!  These are all very good signs.  Dr Smith called the surgery a success.  There were no complications and he was able to get all of the tumor mass he was going for.  We will have to work with our oncology team to address the small remnants remaining.

We are so thankful to see Emmett make it through another brain surgery!  We will be in the hospital for a few days as he recovers (ICU for at least one night, then we'll be moved to 9 North).

Dr. Smith is very entertaining.  When Emmett asked him this morning whether he was going to use a robot to do the surgery, Dr. Smith said no, he would be doing the entire surgery by hand...with guidance from his GPS navigation system, ultrasound, and microscope.  Dr. Smith says he does like to cheat as much as he can: "Like my grandpa says, 'if you're not cheating, you're not trying.'"  He did tell Emmett that he does like tech and especially robots.  He considers his Tesla a robot the way it drives him through traffic on his way to surgery while he's texting and doing other things on his phone.  Not sure I'd leave my life and 18 years worth of medical training in the hands of the engineers at Tesla...especially considering I'm an engineer myself.

Dr. Smith is also famous for jokes.  The joke this morning was about the dog in the old west who walked into a saloon with a huge bandage on his leg and said "I'm looking for the guy who shot my paw!"  Even Emmett smiled at that one.

We're so thankful that surgery is over and that we can now focus on recover and the next steps moving forward.

Thank you so much for your fasting, prayers, and faith!  The sustaining power it brings strengths and lifts our family!

Emmett, Lion, and Mom watching Tom and Jerry after surgery.

Tuesday, September 24, 2019

Seizures...and now, surgery

It has been a very eventful week here in Boston.

Last Monday intrathecal chemotherapy started (injected right into the brain 5 days/week).  All went smoothly last week.  But yesterday after they injected Emmett's brain with etoposide for the first time, he had a seizure.  It was a pretty tramatic experience -- Emmett has never had a seizure before.  It wasn't a very "big" seizure (localized to the right side of his face), and it only lasted about a minute, but he did lose consciousness and it made our hearts stop and set things in motion very quickly.

They admitted Emmett to the hospital for testing and observation.  A quick look MRI revealed that his lesion has grown approximately 1 cm in the past two weeks from 16 mm to 25 mm.  This increase in size (and associated swelling) is putting pressure on his left motor strip which controls the right side of his body.  This explains why his seizure only affected the right side of his face. 

The team had already tentatively scheduled surgery for Monday.  But after reviewing this latest information they moved surgery up to Thursday.  Emmett will remain in the hospital for observation until that time. 

Emmett had another seizure last night, but soon thereafter the team started anti-seizure medications and he hasn't experience any more.

One bit of good news is that after Emmett's second CSF sample from last Tuesday came back "suspicious", subsequent samples on Friday and Monday came back "atypical" and "clear", and that is great news!  Hopefully the IT chemo is doing it's job and cleaning up any loose cells floating around in Emmett's brain.

This week we will be praying and fasting for a few different blessings for Emmett.
  1. That everything goes smoothly with surgery on Thursday (i.e. doctors can get the tumor, and with no complications)
  2. That there are no lasting side effects
  3. That the team comes up with a good treatment plan moving forward
Anyone who wants to join us in prayer and/or fasting for these blessings is welcome!

Wednesday, September 18, 2019

Happy Birthday Emmett!

We are very excited to be celebrating Emmett's 9th birthday today!  What a miracle and a blessing to enjoy another birthday together!  Emmett is feeling great today and we look forward to spending a wonderful, full-filled day doing the things he likes.

Emmett had his friends over for a birthday party this past Saturday and they all had a great time.  Maybe I'll post some pictures later.

We'll keep praying for the chance to spend another birthday together next year! 

Sunday, September 15, 2019

Another setback...

After a wonderful summer in albuquerque, we returned to Boston in September for follow up appointments and discovered that Emmett’s cancer has come back.  This news was devastating: we expected that craniospinal radiation would at least buy a lot of time if not completely cure Emmett.  He has always responded well to radiation.  We all were very surprised to learn of this latest recurrence.

Treatment options are limited, but the team has some things they want to try right away, and we start treatment on Monday.  Please pray for Emmett!

Emmett continues to feel well, and we hope and pray that the effects of the cancer are not felt anytime soon.

I’ll update this post with more information soon.

Monday, August 19, 2019

Emmett speaks in Stake Conference

Emmett was asked to give a talk in church about the challenges he's had in his life and how he's been able to bring people closer to Christ.  The stake president asked if Katy and I would help him write those remarks.  Preparing the talk gave us all a chance to reflect on the last 7 years.  We took the opportunity to share with Emmett some of his early experiences that he was too young to remember.  

Emmett has been under the weather lately with the lingering effects of radiation combined with a viral bug, but this morning he felt well enough to stand up and give his talk, even if his voice was a little weak.  The meeting was a very emotional one for our family as we watched Emmett share his life story and a few of the blessings of heaven that have gotten us to where we are today.  The spirit of the meeting outpouring of love we felt from so many people was overwhelming.

We thought it appropriate to share Emmett's talk here:

I’m Emmett Lillrose;  I’m almost 9 years old;  I like to garden-this year I grew red corn!  I have a 4 year old brother, Clayton and a sister Charlotte that’s almost 2.  I was born in Albuquerque and I love Dion’s pizza, swimming and playing tennis.  
Today I’d like to talk to you about how “the tender mercies of the Lord are over all those whom he hath chosen...to make them mighty even unto the power of deliverance.”  Often the Lord’s tender mercies come through his angels.
Many years ago, when I was 17 months old, I stopped walking and crawling suddenly one day. We went to our pediatrician's office at around 5:00 pm and he said we should go to the ER and pack a bag because we would probably be there a few days. We got there around 7:00pm the same day. When we got there, it took all night and they finally could do an MRI in the morning and they said that there was a tumor in my spine and they were going to do a cat scan to get a clearer, better image. 
After that, we stayed in a room and I hadn't gotten to eat breakfast or lunch and I was just starting to have a little milk when the doctors came rushing in and said that I needed to stop eating and go to surgery immediately because if they left the tumor in my spine much longer it could do serious and permanent damage. They said that the specilaized surgeon was going to leave on vacation but they had called him back just in time. 
So I went into surgery and as an answer to many people’s prayer, they got all that part of the tumor.  As soon as I woke up after my surgery I tried to stand up right away, even with all the tubes and wires connected to me, and I could!  My parents were so excited to see me stand again after the surgery and said it was a miracle!
After I recovered from the surgery we had to go to Boston for almost 2 years for more medicines and proton radiation treatment.  Our bishop told us right away “people want to help get you to Boston!” and people did help and we were so thankful. The doctors in Boston are the very best ones for me and are the smartest at treating my type of tumor.  
Many other parents try to get advice from our doctor because she is so good, but she is very busy.  We feel VERY blessed that we have her and her team to take care of me.   My medicines made my hair fall out, and my dad started shaving his head so he could match me.  We never expected it, but over the next few months, we received almost 50 pictures of friends and family that were now also bald, or had donated braids.  This touched my parents’ hearts.
A lot of times I had too many tubes or felt too sick to get up and play with real toys;  and my ward was so thoughtful to send an iPad that I still use for a distraction during procedures and long waiting times.   My parents were touched to see that so many here at home remembered me even though I was so far away and it helped us feel Heavenly Father’s love.
My mom and dad said it would take a whole book to write about everyone’s kindnesses.   Many feel that what they have done is insignificant, but we feel that all these big or small angelic services have each impacted our lives and woven together they are strong enough to lift us up!  Elder Holland talks about angels of all types.  He says:
 “But when we speak of those who are instruments in the hand of God, we are reminded that not all angels are from the other side of the veil. Some of them we walk with and talk with—here, now, every day. Some of them reside in our own neighborhoods...My beloved brothers and sisters, I testify of angels, both the heavenly and the mortal kind. In doing so I am testifying that God never leaves us alone, never leaves us unaided in the challenges that we face.”   
I will tell you about some more of these angels…. 
While I lived in Boston, we went for a walk one day and found a house that was being rebuilt, so there was always some sort of construction truck there.  We came often to watch the trucks and met the construction boss, Sean, who gave me a small toy truck from his son.  At Christmas time when I was 2, he stopped by my house.  

He wanted to make sure I had my own construction gear so he gave me a toy truck to sit in and my own set of tools!  One day he even sent an ice cream truck to my house!  And another day I woke up to find two bobcat skid-steers on the front lawn!

There was another man named Bob that lived nearby.  He was so nice and said I could come swim in his pool any time.  He worked for the trolley company in downtown Boston and for my birthday, he drove a trolley up to my house and gave me and my friends all a big ride around the town!  He even let me drive it for a minute.  

Another time I was out playing in my yard and a firetruck was driving by and they just stopped and let me get in and see the firetruck!  These strangers became special to us when they went out of their way to make me smile any way they could think of and they didn’t have to do that.  I think that’s how Jesus would treat strangers. 

In 2017, I needed treatment again so we used to go to Denver Colorado a lot-every other week for over a year!  I had a lot of new doctors there who were all really friendly.  I had to take a new trial medicine twice a day that tasted disgusting - like they had added much much too much sugar.  It tasted like cough syrup.  (I even think it tastes like rotten eggs and rotten waffles that got run over by a trash truck 15 times.)   

In Denver we worked with Dr. Hoffman who has a big heart. When it came time for the first MRI, we were all a little nervous because this medicine had to work because we had very few options.  For the first time ever, a doctor came out to the waiting area to look for us after my MRI!  She couldn’t hold in the good news and told us it had worked!  Dr. Hoffman was holding back tears when she said, “this has restored my faith!”    I think it would be a hard job to try to help kids with cancer and we were glad she appreciated this miracle with us.   

I’ve been to radiation a few times now, so we have gotten to know my doctor and nurse there really well.  This year we had a new PA, Julia, that we love, too.  Julia told us she already heard all about me and every time my name comes up in the Board Meetings, no one can believe how well I am doing and they aren’t sure how that is!  Even though I need more treatment, they don’t expect me to be so healthy and happy looking and Julia says it makes the team so happy to hear about me doing so well.  I think the doctors see so many prayers being answered.  
My parents have a blog that tells all the miracles and blessings we have seen since I was diagnosed with a brain tumor.  With every new challenge, we try our best to focus on the blessings from heaven that are lifting me up.  In this way we share our testimonies of Jesus Christ.  We’ve heard from people who started praying again after hearing my story, or who started coming to church again.  
We have also heard from many people who are members of other faiths who pray for me in prayer groups with their own churches.  Some of these people we have never met.  Sometimes when we’re in a store, or in the park, people come up and ask for my name so they can pray for me.  It makes me happy to see people draw closer to Jesus Christ.   
Once I was asked to pray before the dinner at a big, fancy, charity fundraising event because they know I believe in Christ.  I think 2-300 people come.  I was only 6 years old, but I wasn’t nervous and I wore my suit.  I was happy they knew I would be proud to pray.
My parents say I was blessed to have a positive attitude.  I always find fun things to do at the hospital.  We have spent afternoons watching the awesome robot meal carts come out of the hospital kitchen and get on the elevators themselves!  Some days I loved just riding the elevators. 

Even though recently we spent tons of hours in the car to go to Denver for over a year, we loved to roadtrip because it meant we could play on the iPad from my ward, eat pizza for dinner and swim at the hotel.   When my hair fell out again this year, I was really sad, but I thought of how nice it is to be bald because I won’t have to spend as much time in the shower and that means I’ll have more time to play!  

And without hair, I mentioned how it will be easier for the doctors to do the medicine in my head.  I have had to do a lot of radiation this year and you have to sit completely still for 15-60 mins every day for weeks, but I don’t mind because I made an awesome playlist of songs that I really like.  It seems like even if I have a lot of appointments or procedures, there’s usually something good about it.   

In the Old Testament account talks of Israel being surrounded by the enemy and the prophet Elisha’s servant panics and asks what they should do.  

Elisha “answered, Fear not: for they that be with us are more than they that be with them.
...And the Lord opened the eyes of the young man; and he saw: and, behold, the mountain was full of horses and bchariots of fire round about Elisha.”
Likewise, the mountains surrounding my family today are also full of angels.  We are never left to overcome anything alone in this life because the Lord sends us tender mercies through his angels.  We are very grateful and feel that so strongly with all our hearts!  If any of you are feeling down or discouraged, look for the Lord’s tender mercies he sends you through his angels and it will lift you up and bless you.
I am forever grateful to many of you especially for your prayers and your small and big acts of service.  They are all tender mercies that help me ‘feel my Savior’s love, in all the world around me’  
I’d like to bear my testimony that I know the church is true, and that Jesus Christ is always there for us.  In the name of Jesus Christ, Amen.

Monday, July 22, 2019

A respite in Albuquerque

Emmett finished craniospinal radiation on 6/28!  He did amazing through it all.  He continues to be our cancer fighting champion that can't be kept down! We pray that is ever the case.

We've developed some very close relationships with Emmett's medical staff at the radiation center and it was hard to say goodbye.  We have come to love Emmett's doctor, his physician's assistant, and his nurse so very much.  There aren't many people who truly understand what it is that Emmett has gone through and the insurmountable odds he has faced.  Or who see the bravery and grace with which he fights his battles.  But after treating Emmett with proton radiation four times in 7 years, the medical staff at MGH have had a chance to really come to know Emmett on a personal level...and in the process, have developed a deep love and appreciation for him....a love that's so clear to see.  And when you see someone who loves your child like their own, who is doing their very, very best preserve your child's health, who so desperately wants your child to fare well, and who falls in love with Clayton and Charlotte in the process, it creates a bond that you can't describe.

Oh how we love the MGH proton therapy staff!

After radiation completed the doctors decided to give Emmett a month off to recover, so we came home to Albuquerque!  How wonderful it's been to be back in our own home this past week!  I can't describe how amazing it feels to live life like a normal family, even if just for a couple of weeks.

We're not sure what the future looks like at this point.  We'll do a follow-up scan in New Mexico in late July, then we'll return to Boston for a follow-up with our primary team in September.  Where we go from there is uncertain.  It's possible that future therapy could be completed remotely from Albuquerque.  Or we might need to spend more time in Boston.  At this point the team is unclear about what we should do next. 

But while they figure it out, we're living the dream in the 505.

Thursday, June 13, 2019

Craniospinal Radiation

Emmett started a new treatment therapy on 6/3, craniospinal irradiation (CSI).  In the past Emmett's radiation treatments have been focal meaning that only the areas with tumor receive a radiation dose.  CSI, on the other hand, radiates the entire brain and spine in an effort to destroy any tumor cells that may have seeded elsewhere within the brain/spine but are too small to show up on an MRI.  CSI is a proactive, aggressive treatment doctors used when they suspect that a tumor may be spreading.  The doctors are hoping it does good things for Emmett.

So far Emmett has tolerated CSI very well.  It hasn't made him nauseous or sick in any way.  Some kids experience strange smells or see flashes of light during the treatment.  But so far Emmett hasn't.  We pray the treatments continue to go smoothly and are effective at targeting his tumor.

While Emmett is receiving radiation we're staying at the Ronald McDonald House at Boston Harbor.  We have a very nice two-bedroom apartment that looks over the harbor.  The kids could watch the boats on the harbor all day long!  We're right next to the Spaulding Rehabilitation hospital which has a very nice park the kids love.  The kids also enjoy riding the shuttle bus to the hospital each day.  We're also doing our best to take advantage of the fun activities the city has to offer.  Monday night Emmett and I went to a Red Sox game that went into extra innings and Emmett was in heaven!  And last night Katy took Clayton on a duck boat tour and he had a blast.  He especially enjoyed driving the duck boat!

So that's the update for now. 

Please keep Emmett in your prayers as he continues his radiation treatments.  Pray that the therapy effectively targets his tumor while sparing his healthy tissue.

Hugs!





Monday, May 13, 2019

A New Challenge...

We received some discouraging news after Emmett's routine MRI in early May.  They've identified a new small spot in his brain that they believe requires treatment.  It's small (4 mm).  Looking back, the doctors now see it on his February MRI, but unfortunately they missed it at the time.  It measured 3 mm in February.

We're meeting with doctors this week to work on a potential treatment plan.  The good news is that we do have options...although the aggressive radiation treatment option they're proposing has its challenges.

It's heartbreaking to see Emmett continue to deal with recurrences...and to see them come more frequently. 

We know that God is in control.  We are very thankful He's seen fit to bless us with "many mighty miracles" in the past.  We pray that more miracles are in Emmett's future!

We welcome all to join us in this prayer!


Sunday, February 24, 2019

Still in the fight!

Today marks 7 years since Emmett's first surgery for cancer treatment.   It is nothing short of miraculous that all these years later we're still kissing him goodnight each day.  He's had his ups and downs, and he's still battling his latest recurrence, but that fact that he's still here, playing cards, building snowmen, and cracking jokes, is nothing short of a heaven-sent blessing...for which we express gratitude and thanks every day.

These years have had their challenges, but thankfully the smiles, the happy moments, and the laughter have far, far, far outweighed the hard times.  And these marvelous years can never be taken away.

We may never understand why the Lord lets certain challenges come into each of our lives, or the timelines he has for us...but we do believe that each day we have with our loved ones is a divine blessing to be treasured so deeply.

We will be eternally thankful for the blessings we have received!  And we will continue to petition the Heavens for another day...and another...and another.  We hope and pray for another 7 years...and another...and another!

May we all appreciate every blessing the Lord is willing to grant us!  And continually seek to understand His will and His timing!



Wednesday, February 6, 2019

Clear Scan!

Emmett's MRI looked stable!!!  We are so excited by the news!  What a wonderful tender mercy from heaven for our family!

We had a good visit with Dr. Chi after the scan on Friday.  She was excited that the scan looked great; however, she was pretty concerned that Emmett has been so sick these past few weeks.  We discovered some pretty significant sores in his mouth last week, but this week was the first time Dr. Chi had seen them (up until Friday we had been working with MGH since that's the hospital where he was receiving radiation).  Dr. Chi was concerned because the medicines she's had Emmett on prevent wounds from healing, particularly Avastin.  So she decided to stop giving him Avastin and the other oral chemotherapy drugs for three weeks to give his body time to completely heal.  So we get a few weeks off!  And we decided to come home!

So we're back in Albuquerque now and will be for a couple weeks.  It feels a little strange to come home in the middle of therapy, but Emmett and Clayton were sooooooooooo very excited by the idea that we had to do it.

We appreciate all the prayers and support of so many wonderful people.  Our hearts continue to be touched by the goodness of so many.  May the blessings of heaven be upon you all.

Friday, February 1, 2019

Post-Radiation MRI

Emmett has his first MRI after radiation today.  Normally they wait a few months to do an MRI to allow time for inflammation to subside, but in his case they wanted one right away.

Also, Emmett has been really sick the past two weeks with the compounding of chemotherapy side effects and a flu bug.  He's finally started to perk up the last couple of days.

If you could please remember him in your prayers, that would be great!

Wednesday, January 23, 2019

Radiation Completes!

Guess who finished his third round of proton radiation today?!  This guy!! 


Grandma and Grandpa joined us for the ringing of the "end of treatment" bell.

  
 
Emmett was especially excited to go buy something with the gift card the hospital gave him today.


Words can't express how proud we are of our very brave, cancer fighting lion! 

Maybe we'll come back and add more details about the day later...but for now we're very proud, thankful....and tired! 

Wednesday, January 9, 2019

Haircut Day

Emmett has continued to do well in radiation -- we're 2/3's through now.  The only side effect Emmett has experienced is hair loss on the left side of his head.  Up until this point he's never let on that it bothered him.  But over the weekend he started talking about wanting to do something about his hair...either grow out the top part to cover his bald spot, or to shave the whole thing.  It was sad to learn that this change in appearance was bothering him, but good see that he had some ideas that would help him feel better.

So we had a haircut day!  Emmett and Clayton both ended up with mohawks....and they actually seem to like it!  I'm glad we could talk Emmett out of shaving his head -- though it took a while.  Emmett's haircut actually goes pretty well with the Viking sword he brought from Albuquerque. 


Emmett loves his soda!

We're way behind on posting -- we had a great Christmas and New Years and have lots of good family time together.  Sometime we hope to post more details about the holidays.  But for now I wanted to provide a quick update on radiation.

Emmett's last radiation treatment is 1/23 -- he's almost done!  We are very excited to be done with this chapter of our journey!

We appreciate all those who continue to pray for us!  I got a call just yesterday from a friend asking specifically what she should be praying for at this point in Emmett's therapy.  To answer her question, and for anyone else asking the same question, we are praying that the radiation and chemotherapy might be effective at targeting his cancer while sparing his healthy cells.  And we always pray that the doctors might be wise and inspired in their recommendations.